About Us

MS United for Truth and Transparency (MSUTT) is a collaborative advocacy effort founded by three individuals connected through lived experience, healthcare expertise, and investigative research. Together, they are committed to improving transparency, informed decision-making, and patient autonomy for people living with Multiple Sclerosis.

Kara is living with MS and brings the lived experience at the center of MSUTT’s mission. Her journey navigating symptoms, treatment decisions, and the healthcare system drives the organization’s commitment to clarity, honesty, and patient empowerment.

Cassandra is Kara’s mother and a registered nurse with decades of clinical experience. After witnessing the challenges her daughter faced, she became an advocate for stronger patient protections and is especially focused on promoting reform and accountability in MS care and pharmaceutical influence.

 Kaylin Bower has been actively engaged in independent MS advocacy work for the past 3 years. She was inspired and felt called to join the MS advocacy space due to personal connections with those who have MS. Her primary advocacy focus has been “battling” the FDA’s egregious approval of Ocrevus (ocrelizumab) for Primary Progressive Multiple Sclerosis (PPMS). She has collaborated with Dr. Peter Doshi and The British Medical Journal on an expose piece about this topic, which can be found here: Multiple sclerosis: Could Roche’s bestselling drug Ocrevus be doing more harm than good in women with primary progressive MS? | The BMJ. Her primary area of interest is research and examining FDA drug approval decisions and the supporting documentation. She has read and analyzed the FDA approval documentation for every currently FDA-approved MS drug, as well as thousands of research articles about MS pathology, drugs, and related topics. She is committed to keeping current and up to date with the latest MS research and developments. She has filed over 20 FDA Citizen Petitions regarding FDA-approved drugs for MS. She is currently a public stakeholder participant in the PDUFA 8 negotiation public stakeholder process and often offers remarks at FDA meetings that allow public participation and comments. She is dedicated to the principles of truth, transparency, honesty, ethics, informed consent, autonomy, beneficence, non-maleficence, and patient empowerment. She considers herself to be a selfless, tireless, passionate, dedicated, and committed advocate for the MS community. She resides in the United States and has no conflicts of interest to disclose. She has independently funded her advocacy work and has received no financial support from any persons or entities. 

MSUTT exists at the intersection of lived experience, clinical understanding, and investigative research. The organization is united by one goal: ensuring that people affected by MS have access to honest, unbiased information so they can make fully informed decisions about their care with dignity and autonomy.